THE SOLUTION IS IN YOU
CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast amounts of information about ALS, creating the most comprehensive biological picture of people with ALS. By openly sharing this information with other worldwide ALS initiatives, Canadians will play a major role in the global effort to understand and treat ALS.
CANADA’S CONTRIBUTION TO A GLOBAL EFFORT
Researchers
The CAPTURE ALS team is led by Dr. Sanjay Kalra, neurologist and ALS specialist at the University of Alberta, and is comprised of a team of world-renowned fundamental and clinician scientists from across Canada.
Participant Partner Advisory Council (PPAC)
Input from people with ALS and family members is essential in making CAPTURE ALS a better research platform. This group helps to shape research priorities, outreach activities, and provide important feedback and perspectives.
Supporters
CAPTURE ALS is not possible without the generous support of its partners.
LATEST NEWS
May 27, 2024 – Congratulations to Dr. Wendy Johnston’s team and the CAPTURE ALS Participant Partner Advisory Council (PPAC) for their research article published in ALS & FTD
The article discusses their findings on how participant engagement in research was implemented over the course of CAPTURE ALS. What a significant milestone for the PPAC!
February 13, 2024 – CAPTURE ALS has reached half its recruitment milestone! The project is funded to recruit 120 people living with ALS or a related disease, and 50 controls. To date, there are 65 participants with ALS/related disease, and 22 controls who have been recruited to the project. Thank you to all our supporters and participants!
February 13, 2024 – Dr. Russ Greiner, Machine Learning Lead Professor at the University of Alberta, and CAPTURE ALS lead member, recently had his paper published in Nature: “Accurate personalized survival prediction for amyotrophic lateral sclerosis patients”. Dr. Greiner will be using advanced computer techniques with CAPTURE ALS data to develop prediction models. Congrats to Dr. Greiner and his team!
Alberta man first to be recruited for CAPTURE ALS
July 5, 2022 – Garry Zelasek is the type of guy who would give you the shirt off his back. “He’s always been selfless that way,” says his wife, Michelle. “He’s just a very kind-hearted soul who is always putting other people before him.” That is why after his diagnosis with Amyotrophic Lateral Sclerosis (ALS), it came as no surprise to his family that he would take every opportunity to take part in as many research study opportunities as he could.
CAPTURE ALS is featured in the McGill Reporter!
June 22, 2022 – The ultimate snapshot of ALS.
Recruitment is OPEN at all sites!
August 26, 2022 – Interested participants living near Edmonton, Toronto, Montreal or Quebec City are encouraged to contact info@captureals.ca for more information.
Two Discovery Grants were awarded to research projects that will use the CAPTURE ALS Platform
February 10, 2022 – Together with Brain Canada, the ALS Canada Research Program awarded $1.125 million to advance the understanding, diagnosis and treatment of ALS. Two of the nine awards support projects that rely on the CAPTURE ALS platform. $125,000 was awarded to Dr. Agessandro Abrahao and team to explore whether image-guided focused ultrasound technology can aid in the delivery of promising new ALS therapies. $125,000 was awarded to Dr. Freimut Juengling and team to explore whether a cutting-edge imaging technique can be used to identify a link between a signalling pathway in the brain and ALS.
ALS IS DIFFERENT FOR EVERYONE.
SCIENCE STILL DOESN’T KNOW WHY.
CAPTURE ALS represents the Canadian contribution to a global effort on understanding ALS. Together we will understand and treat ALS much faster.
About Us
CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to capture the most comprehensive biological picture of people with ALS.
News
Jul 5, 2022 – Alberta man first to be recruited for CAPTURE ALS
Jun 22, 2022 – CAPTURE ALS is featured in the McGill Reporter!
Mar 17, 2022 – Recruitment is OPEN in Edmonton!
